2018 Christmas Gathering

The White Knucklerz RC for Local Sick Children will be Sponsoring Baileigh and Tayla for Christmas 2018 … 

We are inviting their families to come join us for a Christmas Meal with all the fixings including Presents … Mrs. Claus will be making a surprise visit all the way from the North Pole …  

Event Poster

Baileigh was diagnosed with a very rare disorder called Bilateral Nodular Periventricular Heterotopia …  which caused her to have a Stroke when she was 6 years old… This condition occurs when a gene is inherited in a X-Linked dominant manner with recurrent infections , blood vessels , weakening of the lining in the ventricles and heart abnormalities…  Diagnosis is evaluated by a Neurologist and Cardiologist who gives an echo-cardiogram or a heart MRI because of the risk for aortic aneurysm…  Treatments show studies evaluating the carotid artery and an abdominal ultrasound due to the risk for a for aortic or carotid dissection of other vascular anomalies… 

Tayla

Tayla is 12 years old and at an early age was diagnosed with Enchephalitis of the Brain…  This acute inflammation (Swelling) of the Brain occurs when a previous infection from a virus or bacterium which started off elsewhere in the body has spread to the brain and the immune system which has been compromised mistakenly attacks the brain tissue …  This terrible illness can abrupt and develop quickly and can cause loss of consciousness and even coma all which can be Life Threatening … In come cases the child may need medical ventilation to help them breathe…  Because there are only a handful of antiviral medication which can help to manage Enchephalitis… The child undergoes constant blood work , CT Scans , MRI ‘s and EEG’s (Electro-Encephalograph) to get a better image of the brain and electrical activity …

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Christmas 2018

 

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White Knucklerz RC for Local Sick Children would like to introduce to the Community Baileigh… she is a smart , funny and brave 13 year old who we are proud to sponsor for Christmas 2018…

Baileigh has a Very Rare Disorder called Bilateral Nodular Periventricular Heterotopia… which caused her to have a Stroke when she was 6 years old…

This condition occurs when a gene is inherited in a X-Linked dominant manner with recurrent infections , blood vessels , weakening of the lining in the ventricles and heart abnormalities…

Diagnosis is evaluated by a Neurologist and Cardiologist who gives an echo – cardiogram or a heart MRI because of the risk for aortic aneurysm…

Treatments show studies evaluating the carotid artery and an abdominal ultrasound due to the risk for aortic or carotid dissection of other vascular anomalies…

Cystic Fibrosis Walk ; May 27 / 18

We the White Knucklerz RC for Local Sick Children had the most Amazing Time Today at the ‘ Walk for Cystic Fibrosis ‘ in Lamoureux Park, Cornwall, Ont….. We Showed Our Support for Hailie , Aiden , Chloe , Luka and Ari…

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